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CVE Cares raises $1,645

3rd-grader has brother with rare disorder

ZELIENOPLE — T.J. Wanamaker and his school’s efforts to help his brother proved fruitful.

T.J., a third-grade student at Connoquenessing Valley Elementary School, brought the idea for this month’s CVE Cares Project to help those with congenital disorders of glycosylation (CDG).

The project raised $1,645 Monday and Tues day, the most raised for the school’s Cares projects this year.

“It’s just amazing how much we got in two days,” T.J. said.

His 4-year-old brother Madon has the disease. He suffers from high liver enzymes, bleeding and clotting disorders, developmental delays and seizures.

Madon also takes medicine for his kidneys to prevent kidney stones, has his cholesterol checked and has his heart monitored.

CDG is a group of rare inherited metabolic disorders that affect glycosylation, which is critical to normal organ development throughout the body, particularly the nervous system. CDG only started to be recognized clinically in the 1980s.

“We’re very excited,” said the boys’ mother Susie Wanamaker. “I’m very thankful for all the people who donated and for CVE for sponsoring such a wonderful program.”

Scott Rupik, T.J.’s third-grade teacher, helped lead the class for the project. He had his beard shaved since the project raised more than $500.

Rupik on Tuesday said how much the project raised over the school’s announcements with the Wanamaker family, including Madon, at the school.

“It really shows how good T.J. and Mr. Rupik worked to try to get people involved,” Wanamaker said.

The school project focuses on a different cause each month.

In April, the project raised $318 for Autism Speaks and $185 for St. Jude’s Hospital. In March, four boxes of donated food and supplies were collected for the Jameson’s Army Food and Clothing Drive.

More than $1,500 was raised in December for the CEED Foundation (Water Well in Uganda) and $418 was raised in November for the American Cancer Society.

The money from this month’s project will be donated to the Children’s Inn at the National Institutes of Health in Washington, D.C. The Children’s Inn is a free, family centered hospital hospitality house on the campus of the NIH.

This was the final CVE Cares Project for the school year.

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