Parents in Toto adapts autism support services
The phrase “in toto” means “all together.”
That's where Parents in Toto — the Zelienople-based nonprofit organization that provides autism resources for families — got its name.
“We are stronger together, in Toto, than we are apart,” said Mary Limbacher, executive director. “Living with autism brings many challenges that the majority of the general population would not understand.”
Toto has been serving the community for more than 12 years, according to outreach manager Megan Shane. It was founded by Limbacher, whose son was diagnosed with autism when he was 10 years old.
“She first created a parent support group for those going through the journey,” Shane said. “After eight years, she saw a positive response.”
Resources like social skills groups are free and available to anyone, made possible by donations and grant funding.
But like everything else, Parents in Toto has been affected by COVID-19.
When the pandemic hit the region, Shane said Toto provided resources to help visitors manage the anxiety. She said social support groups adapted to meet the needs of both regular visitors and others in the community.
“We have maintained contact through our email list and social media,” Shane said.
Groups focused on creative writing, relaxation time and cooking were developed over the summer to engage those needing extra services.
Shane said offering resources online via Zoom has allowed for new skill growth and communication — an element particularly important to people living with autism.
“There is a need within our community for predictability and routine and connection,” Shane said.
In a normal year, Toto relies on support from the community to provide autism resources to some 100 families from Butler and neighboring counties.“The support of the community ensures that we can continue to meet needs,” Shane said.The Rotary Club of Zelienople is one such supporter.As part of its 97+ Campaign — during which the club is celebrating its 97 years by donating 97 or more items to an organization every month — Rotary hopes to help Toto deliver services.“The network the agency has created for these families ... (is) a lifeline,” said Kathy Corcoran, club president.Corcoran hopes the Rotary's effort will help Parents in Toto continue to extend its services.“A recent Facebook campaign helped Toto reach 50 states in 50 days,” Limbacher said.
Toto is having a livestream “Toto-thon” Oct. 2 to raise funds for the autism center and groups. A cash drawing and raffle are included in the event. More information is available on Toto's Facebook event page.Toto hasn't returned to in-person group meetings yet. The center in Zelienople is open from 11:30 a.m. to 2 p.m. Tuesday through Friday for appointments or visits.
